Our goal is to make your child as comfortable as possible, while using the most innovative therapies and treatments available. That's why we have expanded access to care at our family-centered service locations.
Sickle cell disease affects many families. In fact, approximately one in every 365 African American children and one in every 16,300 Hispanic-American children will be diagnosed with sickle cell disease, making it the most commonly diagnosed disease in newborn screenings.
Treating nearly 1,400 children a year, Children’s National is among the largest sickle cell programs in the country. We offer an array of services designed to meet all of your child’s health needs, with special focus on his or her safety and comfort.
From dedicated pain clinics for older children to specialized infant sickle cell care, Children’s National delivers care and support to provide a sense of well-being and normalcy to children and their families.
Highlights of our program include:
The Annual Sickle Cell Family Education Symposium, “Living Well with Sickle Cell,” that was scheduled for March 7, 2020 has been postponed. We will be in touch with details as they become available. For more information, please contact our team at 202-476-2140. This annual event offers families the opportunity to learn more about specialty clinics at Children's National, bone marrow transplants, nutrition and much more.
The Root spotlights Bryce, a Children's National patient, who took place in our ground-breaking clinical trial.
Sickle cell disease is an inherited blood disorder that impacts the red blood cells that carry oxygen to the tissues of the body. It is caused by a change in the genes for hemoglobin, which carries oxygen inside the red blood cells. This change causes the cells to take on a sickle or crescent shape. The sickle-shaped cells tend to clog small blood vessels and block blood flow to the tissues and organs. This can cause many complications associated with sickle cell disease, such as anemia, pain crisis, acute chest syndrome, and stroke.
With innovative treatments at Children’s National, patients diagnosed with sickle cell disease can still live a healthy and active life. The team at Children’s works with patients and families to understand and treat their disease from its earliest stages.
Our comprehensive approach includes delivering age-appropriate care:
As a premier sickle cell treatment program, Children’s National offers the best available treatments.
Your child’s care may include:
For more information or to make an appointment, call us at 202-476-7060, or meet the team.
A young boy is cured from sickle cell disease due to a groundbreaking clinical trial at Children's National.
Director, Comprehensive Sickle Cell Disease Program
Director, Comprehensive Hemostasis and Thrombosis Program Hematologist
Director, Therapeutic Apheresis Program Hematologist
Blood and Marrow Transplantation Specialist
Barbara Speller Brown
Families and staff from Children's National Comprehensive Sickle Cell Program gathered for an educational event at our main campus that included presentations from various government and advocacy organizations, sharing knowledge and experiences about the most common inherited blood disorder in the United States.