Tuberous Sclerosis Program Contact number | 571-405-5961

Children’s National Health System is one of 47 recognized clinics in the United States. We treat our children who are diagnosed with TSC, and continue to provide consultation with primary care physicians and some outpatient services for our patients into adulthood.Children with TSC may have associated conditions or complications, such as seizures that result from tumors growing in the brain. 

Many also have attention deficit disorders, developmental delays, and learning disorders.Our multidisciplinary program ensures that TSC patients have access to all of the necessary specialists. The care team includes pediatric specialists from the following divisions at Children’s National:

Specialized Care for Children

TSC is a relatively rare genetic disorder that causes tumors to form in various organs, including the brain, eyes, heart, kidney, skin, and lungs.

The true prevalence (the number of cases) of TSC is unknown, but its incidence (new cases) is estimated at 1 in 6,000 live births. This means approximately 50,000 individuals in the United States and more than 1 million worldwide have TSC. It occurs in both sexes and in all races and ethnic groups.

Brynleigh's Story

brynleigh teaser

Two and a half years ago, Adamstown, MD residents Lauren and Sean Shillinger gave birth to a beautiful little girl named Brynleigh. Brynleigh was their first child, and Lauren experienced a full-term pregnancy and a normal delivery. But when Brynleigh was just 9 1/2 months old, Lauren and Sean started to notice something unusual in Brynleigh’s behavior.

Brynleigh's Story

Tuberous Sclerosis Program Team

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We see children from around the Washington, DC, area, nation, and world who need the specialized expertise and child-focused care we offer.

Related Care Services

Pediatric specialists work closely to ensure an integrated approach to caring for each child and family.