What patients and families need to know
Intestinal Rehabilitation Program
The Dream Team
Intestinal rehabilitation takes a team effort. Learn more about our cross-disciplinary team of pediatric experts.
When your child has intestinal failure, he or she cannot digest enough nutrients and fluids to maintain proper growth. Often, children with intestinal failure need to receive nutrients through an intravenous (IV) line, called total parenteral nutrition (TPN).
At Children’s National Hospital, our Intestinal Rehabilitation Program focuses exclusively on treating children with intestinal failure, with the goal to wean them off TPN.
Intestinal Rehabilitation Program
We offer infants, children, and teens the full spectrum of services for intestinal failure. Children’s National is the only hospital in the area with an inpatient unit specifically for intestinal rehab patients, and one of the few in the country dedicated to intestinal rehabilitation.
Features of our program include:
- National leaders in the field. Our nationally renowned team members have dedicated their careers to treating children with intestinal failure. We offer a precise diagnosis, a personalized treatment plan, and ongoing care for children and families.
- Specialized care. Intestinal failure can be complex and difficult to diagnose and treat. Often, families that did not find success with other treatment programs turn to us. Families come to Children’s National from around the world because of our highly regarded team, years of experience, and unmatched expertise.
- Personalized services. We believe that there is no one-size-fits-all treatment for intestinal failure. The best solution is the one that is best for your child. We have the skills and resources to incorporate the full spectrum of medical management and surgery, so we can create a treatment plan that offers your child optimal results.
- Excellent outcomes. We are proud of our exceptionally high survival rates. Survival rates for children with short bowel syndrome are 98.7 percent. In addition, 85 percent of our short bowel syndrome patients are weaned from TPN within approximately five months of beginning our program.
- Family-centered environment. Because intestinal rehab is an ongoing process, we get to know children and families personally. We believe in a team approach, and we encourage you to be an active participant in your child’s team. Our facilities include large, private rooms equipped with flat-screen TVs and the ability to transport children easily and comfortably.
Intestinal Rehab: Treatments We Provide
We incorporate medical management and surgery to create a treatment plan tailored to your child’s needs. Your child’s specific therapy will depend on a number of factors, including his or her condition and general health.
Our treatment options include:
- Medical management. This includes dietary management, effective treatment of complications, and closely monitoring nutrition intake as well as fluid and electrolyte balance.
- Surgical treatment. We offer the most advanced surgical options, with the goal of improving the child’s ability to absorb nutrients. Some of the country’s most highly trained pediatric surgeons will perform your child’s surgery. Procedures include:
- Bowel lengthening surgery, including the Bianchi (Longitudinal intestinal lengthening and tailoring – LILT) and STEP (serial transverse enteroplasty) procedures
- Ostomy in continuity (“chimney ostomy”). We have developed this innovative technique that allows us to create an ostomy (opening from the inside of the body to the outside) without removing a large portion of the intestine for bowels with inadequate motility.
- Intestinal transplantation, working closely with the Center for Intestinal Care and Transplant at MedStar Georgetown University Hospital.
- Managing complications. We work to prevent and manage any complications that arise, including diarrhea, nutrient loss, and complications relating to intravenous feeding.
Intestinal Rehab Team
We meet your child’s immediate medical needs and help you learn how to manage your child’s condition. Program specialists, who know your child’s medical history, are available 24/7, to answer general questions and help in an emergency.
Our team includes:
- Pediatric gastroenterologists
- Pediatric surgeons, with specific training and interest in small bowel reconstruction and bowel-lengthening procedures
- Intestinal Rehabilitation Program coordinator, who helps families coordinate care throughout their experience
- Liver and bowel disease experts
- Pediatric anesthesiologist, who manages all of your child’s sedation and pain management needs
- Registered nurses
- Physician assistants
- Social worker
Intestinal Rehabilitation Program Team