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Coronavirus Update:What patients and families need to know

Multidisciplinary Celiac Disease Clinic

The Multidisciplinary Celiac Disease Clinic at Children’s National Hospital allows children diagnosed with celiac disease and their families the opportunity to schedule one integrative appointment, where they will be seen by a gastroenterologist as well as the clinic’s dietitian, education team and psychologist.

Our approach is to care for not only the physiological symptoms and concerns associated with celiac disease, but to also evaluate the psychological problems that may arise as a result of the condition.

All children at the Celiac Disease Clinic will have the benefit of:

  • A care coordinator who ensures an optimum experience in the clinic and care in accordance with published best practice guidelines
  • The opportunity to consult with a dietitian specialized in ensuring a well-balanced, gluten-free diet
  • A meeting with a psychologist to teach patients skills such as coping and adjustment, and resolve tensions related to having a chronic condition

All families will have access to extensive educational resources including:

  • Nutrition education classes
  • A podcast
  • Web-based cooking videos
  • Peer mentor activities for varying age groups and parents
  • Several other recurring activities to help children live a happy and healthy gluten-free lifestyle

Upon welcome to the program, each family will receive a Celiac Disease Welcome Pack that gives a full overview of our offerings. 

Clinic Meeting Schedule

The clinic meets every Friday via telehealth. There are currently no plans to return to in-person clinics until the COVID-19 pandemic is under control. The clinic runs in the morning on the first Friday of the month, and the afternoon on the remaining Fridays. Additional appointments with individual providers are also available at other times during the week.

What to Expect at the Celiac Disease Clinic

  • The appointment will last approximately 2-3 hours.
  • You will receive a Zoom link from Program Coordinator Kate Raber.
  • During the appointment, your family will participate in an education session in addition to meeting with each of the providers.
  • Newly diagnosed patients will visit with our gastroenterologist, psychologist and education staff at their first visit. Follow-ups will occur at 3 months (with our dietitian and nurse practitioner), 6 months and 1 year.
  • Patients with an established celiac disease diagnosis will meet with gastroenterologist, psychologist, dietitian and education staff at their first visit. Follow-up visits will occur annually (or sooner, if needed). 

For questions relating to resources available through the program or for help setting up a 504 plan for your child's school, please email Program Coordinator Kate Raber.