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Craniosynostosis

What is Craniosynostosis?

Craniosynostosis is a condition in which the bones in an infant’s skull grow together too early, causing problems with brain growth and head shape. The edges of the skull bones are called sutures, which normally close by age 2 to 3. With craniosynostosis, the head stops growing in the areas where the sutures have fused, and expands abnormally in other areas.

Craniosynostosis can occur by itself or as a part of certain craniofacial (head and facial) syndromes. If left untreated, craniosynostosis can lead to serious complications, including:

  • Head deformity, possibly severe and permanent
  • Increased pressure on the brain
  • Seizures
  • Developmental delay
Children's Team

Children's Team

Providers

Albert Oh

Albert Oh

Director, Cleft and Craniofacial Program
Director, Plastic Surgery Fellowship
Plastic and Reconstructive Surgeon
Gary Rogers

Gary Rogers

Division Chief, Plastic and Reconstructive Surgery
Hasan Syed

Hasan Syed

Director, Pediatric Neurosurgery Fellowship
Neurosurgeon
Departments

Departments

Neurosurgery

Our neurosurgery experts provide advanced care for newborns and children with complex neurological conditions.

Plastic and Reconstructive Surgery

Our team of pediatric plastic surgeons have dedicated their careers to plastic surgery procedures for babies, children and teens.

Cleft and Craniofacial Program

The Cleft and Craniofacial Program at Children’s National brings together experts from 10 pediatric disciplines to provide complete care for children with craniofacial disorders. Our multidisciplinary pediatric team helps more than 400 children every year.

Rare Disease Institute

Children’s National Rare Disease Institute (CNRDI) is a first-of-its-kind center focused exclusively on advancing the care and treatment of children and adults with rare genetic diseases.

Invest in future cures for some of life's most devastating diseases

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Ryan M's Story

Ryan Morales and Kurt Newman

Father and son Ryan and Alex Morales know what it’s like to spend days—even weeks in the hospital. The two have been patients at Children’s National Hospital for more than 10 years. Their stories are connected by Children’s National physicians who have been treating them since 2005 and continue to see them improve and grow in more ways than one.

Read More of Ryan M's Story