Skip to main content Skip to navigation
We care about your privacy. Read about your rights and how we protect your data. Get Details

Craniosynostosis

What is Craniosynostosis?

Craniosynostosis is a condition in which the bones in an infant’s skull grow together too early, causing problems with brain growth and head shape. The edges of the skull bones are called sutures, which normally close by age 2 to 3. With craniosynostosis, the head stops growing in the areas where the sutures have fused, and expands abnormally in other areas.

Craniosynostosis can occur by itself or as a part of certain craniofacial (head and facial) syndromes. If left untreated, craniosynostosis can lead to serious complications, including:

  • Head deformity, possibly severe and permanent
  • Increased pressure on the brain
  • Seizures
  • Developmental delay
  • What causes craniosynostosis?
  • What are the types of craniosynostosis?
  • What are the symptoms of craniosynostosis?
  • What are the treatments for craniosynostosis?
  • What are the life-long considerations for children with craniosynostosis?
Children's Team

Children's Team

Providers

Albert Oh

Albert Oh

Director, Craniofacial and Pediatric Plastic Surgery Fellowship
Co-Director, Cleft and Craniofacial Program
Plastic and Reconstructive Surgeon
Gary Rogers

Gary Rogers

Division Chief, Plastic and Reconstructive Surgery
Marshall Summar

Marshall Summar

Division Chief, Genetics and Metabolism
Director, Rare Disease Institute
Departments

Departments

Plastic and Reconstructive Surgery

Our team of pediatric plastic surgeons have dedicated their careers to plastic surgery procedures for babies, children and teens.

Neurosurgery

Our neurosurgery experts provide advanced care for newborns and children with complex neurological conditions.

Craniofacial Program

The Craniofacial Program at Children’s National brings together experts from 10 pediatric disciplines to provide complete care for children with craniofacial disorders. Our multidisciplinary pediatric team helps more than 400 children every year.

Rare Disease Institute

Children’s National Rare Disease Institute (CNRDI) is a first-of-its-kind center focused exclusively on advancing the care and treatment of children and adults with rare genetic diseases.

Invest in future cures for some of life's most devastating diseases

See other ways to give
Share your birthday with a child. Celebrate your life, and give a chance to someone who desperately wants to have as many as you. Share your birthday with a child. Celebrate your life, and give a chance to someone who desperately wants to have as many as you. Make it happen

Molly's Story

Mollys Story

3-year-old Molly is obsessed with the movie “Frozen.” And like the fearless princess in Disney’s icy animated epic, there’s something very special about Molly. She was born deaf.

Read More of Molly's Story