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Pediatric Carpenter Syndrome

What is Carpenter Syndrome?

Carpenter syndrome is an extremely rare congenital (present at birth) disorder that causes abnormal growth of a baby’s skull, fingers, and toes. Babies born with Carpenter syndrome have skull bones that fuse too early and webbed, unusually short, or extra fingers and toes.

Departments

Departments

Cleft and Craniofacial Program

The Cleft and Craniofacial Program at Children’s National brings together experts from 10 pediatric disciplines to provide complete care for children with craniofacial disorders. Our multidisciplinary pediatric team helps more than 400 children every year.

Rare Disease Institute

Children’s National Rare Disease Institute (CNRDI) is a first-of-its-kind center focused exclusively on advancing the care and treatment of children and adults with rare genetic diseases.

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Share your birthday with a child. Celebrate your life, and give a chance to someone who desperately wants to have as many as you.

Share your birthday with a child. Celebrate your life, and give a chance to someone who desperately wants to have as many as you. Make it happen