What patients and families need to know
Rare Diseases Expert Discusses Importance of Involving Patients in Rare Disease Community
January 15, 2015
As part of an ongoing editorial collaboration with Medscape Rare Diseases, Marshall Summar, MD, Division Chief of Genetics and Metabolism, speaks about the importance of involving patients in the field through patient registries which help physicians and researchers begin to understand rare disease and develop better therapies. Children's National treats more patients with rare diseases than nearly anywhere else in the world.
Watch the video here.
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