A recent article in the Capital Business Journal, a Washington Post publication, about diversifying the local economy included information about how Children’s National is using data to help improve care for children with chronic conditions like sickle cell disease.
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The Sheikh Zayed Institute’s Pain Medicine Care Complex is one of only a few programs in the country focused exclusively on managing pain for infants, children, and teens. When children are unable to express their pain in words, our pediatric specialists have the unique insight to help.
Almost 18 years ago, Audrey and Paul Sr. were living in Maryland awaiting their son’s arrival into the world. In preparation, they did all the research that expecting parents do, including looking for the best pediatrician and comparing car seats. In addition to this routine research, they also looked for the best sickle cell disease programs within the area. Since both of his parents had sickle cell trait, there was a one in four chance that their son would have sickle cell disease.
Jozlyn was born with sickle cell disease and couldn't participate in many activities, but three years ago, she had a bone marrow transplant, and is now back at school and is a cheerleader.
Our blood and marrow transplant offers trials for cellular therapy to reduce infection and relapse in children with cancer