Sickle Cell Pulmonary Clinic
Children's National has one of the largest and most active pediatric sickle cell programs in the country. Many sickle cell patients have associated, unrecognized lung disease, and the Sickle Cell Pulmonary Clinic is dedicated exclusively for children and adolescents with sickle cell disease who require specialized pulmonary care.
Our Providers
Our pediatric specialists provide personalized care for your child’s physical, mental and emotional health needs.
Contact Information
For appointments, please call 1-888-884-BEAR (2327) and for information, call 202-476-2128.
Improving Patient Outcomes
Our goal is to moderate complications associated with the disease and help improve quality of life for patients — enable our young patients to enjoy a normal childhood as much as possible.
Our pulmonary physicians have the experience and expertise to accurately diagnose any pulmonary concerns. They work closely with hematologists to improve the pulmonary health of children with sickle cell disease and increase survival rates for children.
We see patients with referrals from Children’s hematology physicians, and patients referred for evaluation and treatment of acute chest syndrome, asthma, hypoxia, and recurrent pneumonia. Our team works closely with the Pulmonary Diagnostic Laboratory, which performs diagnostic pulmonary function testing with diffusion capacity. These tests measure the effectiveness of oxygen transfer between the lungs and the bloodstream.
Members of the Children’s National Sickle Cell Disease Program team explain the process and importance of blood donation for sickle cell patients and their families.
First Ever Sickle Cell Gene Therapy
On May 6, 2024, at Children's National, 12 year-old Kendric received the world's first gene therapy treatment for sickle cell disease. Approved in December 2023 by the FDA, these treatments are created by collecting and editing the patient's own blood cells and reintroducing them to the body. (The New York Times, account required)
Conditions We Treat
Understanding your child's condition is an important step on your treatment journey. Learn more about causes, symptoms and diagnosis for a variety of conditions, as well as unique treatments and research being performed at Children's National.
Administrative Contact Information
To contact our administrative team, call 202-476-2478. To send a fax, dial 202-476-5864.
Advice From Our Experts
Want advice on raising healthy, happy kids? The experts at Children's National are here for you! Get reliable advice from trusted doctors on the Rise and Shine blog. We're sharing our knowledge on everything from children's health to practical parenting tips.