Inherited and Polycystic Kidney Disease Program
The Inherited and Polycystic Kidney Disease (IPKD) Program at Children's National Hospital provides integrated care for children with rare and inherited forms of kidney disease. The IPKD Program consists of a multidisciplinary team of clinicians, genetic counselors, and nutrition and psychology specialists to serve the unique needs of children with various forms of genetic kidney disease.
Our Providers
Our pediatric specialists provide personalized care for your child's physical, mental and emotional health needs.
Contact Information
For appointments, please call 1-888-884-BEAR (2327) and for information 202-476-2090.
Conditions We Treat
Understanding your child's condition is an important step on your treatment journey. Learn more about causes, symptoms and diagnosis for a variety of conditions, as well as unique treatments and research being performed at Children's National.
- Polycystic kidney diseases, including ADPKD and ARPKD
- Tuberous sclerosis
- Alport syndrome
- Lowe syndrome
- Undiagnosed chronic kidney disease
- Other genetic kidney conditions
Our Services
The IPKD Program at Children's National provides comprehensive medical evaluation and management of genetic forms of kidney disease in children. Among our services are:
- Combined multidisciplinary appointments with kidney, liver, preventive cardiology, genetic counselors, and nutrition and psychology specialists
- Ordering clinical genetic testing and interpreting the results
- Pre- and post-genetic counseling for patients and families
- Referrals to other specialists as needed for the personalized care and management of children with various forms of genetic kidney disease, such as urology and endocrinology
- Introduction of rare kidney disease specific resources to patients and their families, for community involvement and outreach
- Participation in national and international registries, as well as ongoing clinical trials, can be discussed with our team
Our Designation
Children's National Hospital is honored to be recognized as a Polycystic Kidney Disease Foundation Pediatric Clinic. We are committed to providing world-class care to children with PKD.
Educational Opportunity
We welcome applicants/trainees (medical students, post-graduate trainees) who are interested in working with this kidney genetics program. Please contact the IPKD program coordinator.
Locations
Introduction to PKD
In this educational session pediatric nephrologist Ashima Gulati, M.D., Ph.D., provides an overview of PKD and its impact. Topics include the different forms of PKD, available treatments, and how to manage the disease.
This webinar recording was created by the Polycystic Kidney Disease Foundation (PKDF).
