At Children’s National, we understand that families have many questions about their child’s heart condition and care. Your care providers may offer specific resources, but we also have online resources available to answer your questions and connect you with the information you need. Estos recursos están disponibles en español.
View Our Resources
504 Plan Information
After your child is diagnosed with congenital heart disease, it is important that a 504 Plan is created to make sure that proper supports are put in place to help your child succeed in school.
Addressing Problems at School
This resource provides tips on how to ask for help if your child is having problems at school due to illness or disability.
Advocacy Resources
Use these advocacy resources to find organizations that can help meet your child’s learning needs after being diagnosed with congenital heart disease.
Communication with Hospital Staff and Your Child’s School
Familiarizing yourself with the staff at Children’s National can help ensure that your child receives the appropriate services prior to his or her return to school.
Individualized Education Programs – CANDO Program
If your child experiences learning difficulties, individualized education programs can help set reasonable goals based on your child’s learning needs.
Information for School Teams
This resource can help your child’s school staff understand congenital heart disease and its impact on a child’s academic and behavioral growth.
Neuropsychological Testing versus Educational Testing
After receiving treatment for congenital heart disease, your child may be eligible for educational testing or neuropsychological testing due to learning changes that may occur.
Setting up Home and Hospital Instruction
Depending on your child’s diagnosis, it may not always be medically possible for him or her to attend school. Learn how you can set up home and hospital instruction.
Mended Little Hearts
Experts from the Cardiac Neurodevelopmental Outcome Program talked to families of congenital heart disease (CHD) warriors at a Mended Little Hearts of Washington, D.C., meeting held at Children's National in spring 2018.