The Global Leukodystrophy InitiAtive (GLIA)
The team and program at Children’s National are important components of the Global Leukodystrophy Initiative (GLIA), a global consortium uniting clinicians, researchers, and patient advocacy groups to advance care and research priorities for leukodystrophy patients. This consortium has published a series of consensus papers concerning the definition of leukodystrophies and genetic leukoencephalopathies, diagnosis, care, and therapies for leukodystrophy patients.
Their mission extends to advancing newborn screening and diagnostic platforms in leukodystrophies, establishing natural history studies to inform standards of care and clinical trial design, and increase the rate of development of therapeutic approaches.