Skip to main content Skip to navigation
We care about your privacy. Read about your rights and how we protect your data. Get Details

Contact Information

To speak with a member of the Leukodystrophy and Myelin Disorders Program, please call 202-476-2120 or email  us.

To make an appointment, please call 202-476-3611, and then choose option 1. Appointments are made only by specialized referral. Contact clinical coordinator or email  us. Referrals to the clinic should come from the referring pediatrician’s office. 

Families can email the program or call 202-476-2120 to verify proper placement into the clinic. 

Families will need separate referrals for Specialty Pediatric visits, Complex Care, Genetics, Speech Language, Neurology, and Physical Medicine.