Resources for Families

At Children’s National Hospital, we understand that families have many questions about their child’s colorectal condition and care. In addition to any resources your child's provider may give you, these online resources can also support your child's ongoing treatment journey:

• Caring for your child's colorectal disorder
• Preparing for your child's first visit to Colorectal & Pelvic Reconstruction
• Accessing Children's National family support services
• Preparing for your child's surgery at Children's National
• Getting ready for surgery in Colorectal & Pelvic Reconstruction
  • Rectal Irrigations
  • Malone Appendicostomy
• Specialized diets 
• Skin care guidelines
• Long-term urologic and gynecologic management for anorectal malformations
• Conditions that can develop in children with anorectal malformations
• ARM Continence Predictor Index (PDF)
• Pelvic Floor Therapy (PDF)
• Constipation and Fecal Incontinence Resources:
  • What You Need to Know About Functional Constipation and Fecal Incontinence
  • Diagnosing Pediatric Functional Constipation
  • Medical Treatment for Pediatric Chronic Constipation and Fecal Incontinence
  • Surgical Treatment for Children With Functional Constipation

Support Networks

• Hirschsprung’s and Motility Disorders Support Network (HMDSN)
• The Pull-thru Network
• ONE in 5000 Foundation
• REACH
• Spina Bifida Association
• United Ostomy Associations of America

Parent Resources

• Colorectal Related Care Services
• 5 Lessons I've Learned From Parenting a Child With a Rare Disease