The Division of Pediatric Colorectal & Pelvic Reconstruction offers a comprehensive Bowel Management Program that provides customized treatment for children who experience constipation and/or fecal incontinence (the inability to control their bowels).
Bowel Management Program FAQs
We’re here to make your child’s treatment journey as easy as possible. Learn how our program works, how we support your family and how we help transition your child to adult care.
Contact Information
For appointments, please call 1-888-884-BEAR (2327) and for information, call 202-476-2656.
Children who benefit from the Bowel Management Program experience problems with constipation or incontinence for a variety of reasons and may have other medical conditions such as:
- Previously repaired anorectal malformations and cloacal malformations
- Previously repaired Hirschsprung's disease
- Motility disorder and severe and chronic constipation (encopresis)
- Spinal disorders that affect the bowel (spina bifida, myelomeningocele, absent sacrum, sacrococcygeal teratoma)
Our program uses a multidisciplinary approach to treatment, with access to all of the pediatric colorectal specialists needed to oversee your child’s care in one place. The program addresses all of the behavioral and/or medical issues that are contributing to a child’s problems with fecal incontinence.
How the Bowel Management Program Works
Children are seen on an outpatient basis for an intensive week of therapy, and then at about 3 and 12 months. Enemas or laxatives may be given to ensure your child has a clean bowel before treatment begins. Your child’s treatment is specifically tailored to their unique needs and condition. Medical specialists work closely with other clinicians in the field, including nurse practitioners with specialized training in colorectal disorders, child psychologists, social workers and nutritionists to customize treatment plans and make adjustments when necessary.
Treatment at our bowel management clinics include:
- Administering medications (such as laxatives) or enemas when needed to soften stool and relax rectal muscles.
- Customized nutrition plans developed by dietitians who create kid-friendly recipes that are high in fiber and offer helpful tips for parents who may have a picky eater. The chosen diet may need to either promote or slow down stooling.
- Education for families on how continence works and why some children experience soiling
- Establishing a bathroom schedule and routine (based around the gastrocolic reflux) to train your child to recognize their body cues and to avoid soiling and accidents
- Connecting with parent support groups
- Setting up a reward system to help encourage your child to go to the bathroom
- Social Work providers help those visiting from out of state to make travel and accommodations arrangements.
Your child’s time in the program may vary depending on several factors including their age, the type of surgical procedure they’ve had (if any) and the severity of their condition. Typically, children who are at potty training age see positive results within three to four months. School-age children may see results anywhere from six months to a year. The success of the program depends largely on following the protocols put into place and working closely with your child’s healthcare team. We make sure we are there for you and your child through every step of their treatment. Our team connects with patients one month, three months and one year after completion of the program. Together, we can help your child achieve success and become accident-free.
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How to Make Saline
Saline is important in the use of antegrade flushes, enemas and irrigations, as our Colorectal team often recommends large volumes of saline to help flush the colon. This video teaches you how to make saline easily at home.
How to Care for Your Child's Malone Site After Surgery
This video reviews every day care measures for your child's MiniAce device. The goal of this video is to educate you on how to keep the Malone site clean and keep your child from getting an infection. Before performing any of the instructed steps in the video, always check with our team or your child's pediatrician for safety.