Resources for Families

If you have questions about meeting your child’s learning needs after congenital heart disease, use this resource to locate advocacy organizations in your area.

This resource is designed to help school staff members better understand congenital heart disease and its impact on a child’s academic and behavioral growth.

Learn the steps for receiving a 504 plan for your child, so that she or he has the proper supports for returning to school after being diagnosed with congenital heart disease.

Your child may experience learning difficulties and need special education services; learn how individualized education programs can help.

Depending on your child’s diagnosis, it may not always be medically possible for him or her to attend school. Learn how you can set up home and hospital instruction.

If your child is having problems at school due to illness or disability, learn how you can ask for help.

Familiarizing yourself with the staff at Children’s National can help ensure that your child receives the appropriate services prior to his or her return to school.

After receiving treatment for congenital heart disease, your child may be eligible for educational testing or neuropsychological testing due to learning changes that may occur.

Experts from the Cardiac Neurodevelopmental Outcome Program talked to families of congenital heart disease warriors at a Mended Little Hearts of Washington, D.C. A PDF of the presentation is also available.