7th Annual Family Education Symposium
The Sickle Cell Disease (SCD) Program at Children's National invites you to learn more about recent breakthroughs in SCD care, including bone marrow transplantation as an option for cureLiving Well With Sickle Cell
At Children’s National, we believe that comprehensive care for children also includes support for their families. We do everything possible to take care of your family’s emotional, spiritual, and logistical needs.
Children’s National Center for Cancer and Blood Disorders: Resources for Families
We offer a range of special services and programs designed to help children and their families cope while living with pediatric cancer. We strive to help families resume some normalcy and predictability in their lives.
Hematology and Oncology patients also have access to a wide range of resources offered to all patients at Children's.
Our supportive care initiatives are focused on improving comfort and quality of life for patients and their families.
These efforts include:
- Gathering feedback from your child in support of research on the side effects of treatment
- Using non-traditional treatment methods, such as aromatherapy and acupuncture
- Providing personalized education and support to ensure your family has a positive experience with our program
Learn more about our Oncology Supportive Care program.
PANDA tends to children under the care of any inpatient service at Children’s National. Our goal is simple: to prevent, reduce, and soothe symptoms for children in the advanced stages of an illness (palliative care). We offer pain management, support, and advocacy services to enhance your child’s quality of life.
Learn more about the Pediatric Advanced NeeDs Assessment and Care Team (PANDA). You can also contact PANDA directly by calling 202-476-4256.
Tracy’s Kids is an art therapy program just for oncology patients. We help kids “just be kids,” by offering art as a way for patients and families to express and distract themselves. Services are available to children all ages and their families in the Art Room of our outpatient clinic and at the bedside.
Children’s National Pediatric Oncology Online is a private community intended for patients, families, and friends to share, connect, and support each other.
Our psychology team is available if you and your child would like help coping with the challenges of living with a chronic illness. The dedicated psychology team for the Center for Cancer and Blood Disorders is led by two licensed clinical psychologists who have experience working with children and adolescents dealing with medical issues. Services may involve meeting with a psychologist during regular clinic visits or during inpatient hospital stays. The team also offers weekly outpatient therapy and brief congnnitive testing. Common problems addressed in treatment include:
- Anxiety or fears about needles or other medical procedures
- Depressive symptoms or sadness
- Difficulty coping with pain
- Problems getting along with friends or talking about illness
- Tantrums and other behavioral problems
- Difficulty sleeping
- Trouble swallowing pills or refusal to take medicine
At Children’s National, our Child Life Specialists create a positive experience for families during their child’s outpatient visit or hospital stay. Our certified Child Life Specialists are specially trained to help children, adolescents, and families understand and cope with illness, treatment, and hospitalization.
Learn more about our child life specialists or contact us at 202-476-3070.
Each of our cancer programs has its own dedicated social worker. These social workers offer a breadth of knowledge about pediatric cancer conditions and the treatments we offer.
They join you and your family in treatment discussions to help you understand what’s happening with your child and communicate your preferences to the clinical team. Our social workers also coordinate any additional support resources you may need.
Learn more about social work.
The Concierge Services team is available seven days a week to make families feel more at home while away from home. From assisting with outpatient and inpatient visits to arranging hotel accommodations the role of Concierge Services is defined only by a family's needs.
Learn more about Concierge Services.
Our board-certified music therapist uses music, movement, play, songwriting, and singing to help children and families thrive during treatment. Services are available at the bedside and in clinic to help distract from discomfort, help your child work through difficult experiences, and provide families with a fun way to be together in the hospital.
Learn more about therapeutic music.
Together with parents, teachers, and school administrators, our Education Specialist helps keep our patients from falling behind in their schoolwork. If your child is going to be out of school for an extended period of time, your medical provider or social worker may provide a referral to the Education Specialist, who will work with your child’s school to develop a plan for ongoing educational support. Volunteer teachers also provide assistance and instruction in our new classroom space and at the bedside.
Our clinically trained chaplains are available to children and families around the clock. Offering support, ritual, and consultation, we help you access spiritual strength and find a sense of peace. A Spanish-speaking chaplain is available on a limited basis (20 hours a week).
Learn more about Pastoral Care at Children’s National. You can also contact Pastoral Care directly by calling: 202-476-3321.
Only steps from your child’s bedside, we offer you and your family a place of quiet respite. Here, you can have a snack or a cup of coffee, check email, read, or just relax. The Ronald McDonald Family Room® just underwent a major renovation to include a washer and dryer, full-sized kitchen, computers with Wi-Fi, and more.
Learn more about the Ronald McDonald Family Room®. You can contact the Ronald McDonald Family Room® Coordinator by calling 202-476-4205.
Because we are devoted to caring for children, we recognize that children of different ages have different needs and enjoy different activities. This is why our team includes a dedicated AYA Patient Navigator, who provides services, resources, and activities to promote the quality of life of adolescents and young adult patients.
The Navigator creates a safe space for AYA patients in the dedicated, inpatient Teen Room, coordinates on- and offsite activities, and connects patients with one another as well as with adolescent and young adult survivors.