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The Children's National Research Institute
The goal of the Healthy Heroes is to offer parents the chance to learn more about how to have their healthy children take part in current research studies. Many research studies need healthy children to participate. Healthy children provide important information that helps researchers better understand how to treat sick children.
Who can join the Healthy Heroes?
Any parent with a child who is < 18 years old can sign up for Healthy Heroes.
What happens if I decide to join Healthy Heroes?
If you decide to join Healthy Heroes, you will be asked your contact information and questions about your child’s health. Your child will receive a Children’s National Hospital t-shirt for joining Healthy Heroes.
If your child qualifies for a research study, we will contact you to see if you are interested in learning more about the research study. If so, we will give your contact information to the research study staff. The staff will contact you to explain the study to you, answer your questions, and ask if you are interested in having your child take part in the study.
Researchers do not expect any risks from your participation in this study. There is always a potential for a breach of confidentiality. Researchers will take the necessary steps to prevent this risk from happening by keeping the study records confidential. Only the people working on the study will have access to your and your child’s information. Your decision to participate or not to participate in this research will not affect your child’s current or future care at Children’s National.
What if I join Healthy Heroes, but then change my mind and want to stop participating?
You can stop participating in Healthy Heroes at any time after you join. If you choose to stop participating, then your and your child’s information will be removed from the Healthy Heroes’ list. Your decision to stop participating in Healthy Heroes will not affect your child’s current or future care at Children’s National.
What if I have questions about Healthy Heroes?
If you have any questions about the research study, please contact Stephanie Norman at 202-476-7635 or email us.
If you are interested in joining Healthy Heroes, please fill out the interest form.
Lisa Guay-Woodford, M.D.