Listening to the patient and family voice in designing clinical research

Presented by
Cynthia D. Morris, Ph.D., M.P.H.
Professor and Vice Chair
Medical Informatics and Clinical Epidemiology
Co-Principal Investigator
Oregon Clinical and Translational Research Institute

Designing an effective research protocol for children and their families that maximizes recruitment, retention, and participation can be jumpstarted by listening to the input of critical stakeholders, including the child and his or her family. The Health Experience Research Network is a developing tool to understand their input during study design and start-up.