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Daniel's Story: Seeking International Expertise in Neurofibromatosis Type 1


Daniel's neurofibromatosis diagnosis had an added complication of scoliosis. Learn more about what led his family to travel from Peru to the United States to seek expert treatment at Children's National Hospital. 

About the Expert

Matthew Oetgen

Matthew Oetgen, MD Division Chief, Orthopaedic Surgery and Sports Medicine
Spine, Hip and Orthopaedic Trauma Specialist

Roger Packer

Roger Packer, MD Senior Vice President, Center for Neuroscience and Behavioral Medicine
Director, Gilbert Neurofibromatosis Institute
Director, Brain Tumor Institute

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Share your birthday with a child. Celebrate your life, and give a chance to someone who desperately wants to have as many as you.

Share your birthday with a child. Celebrate your life, and give a chance to someone who desperately wants to have as many as you. Make it happen