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Coronavirus Update:What patients and families need to know

The Children's National Research Institute

Research Profile

Education & Training

  • Internship, Psychology, Forensic Services, St. Elizabeth's Hospital, Washington, DC, (1991)
  • Ph.D., Psychology, American University, Washington, DC, (1991)
  • M.A., Psychology, American University, Washington, DC, (1987)
  • M.A., History, Northeastern University, Boston, MA, (1974)
  • B.A., History, Northeastern University, Boston, MA, (1972)

Academic Appointments

  • Professor of Pediatrics, George Washington University School of Medicine and Health Sciences

Research & Publications

Awards & Funding

Grant Number: 2 R01 NR015458-06A1
Dates of Grant Support 5/30/2020-4/30/2022 
Funding Agency: NINR/NIH
Title of Grant: Type 2 Renewal FACE-TC 
Goal of Grant Our goal is to conduct qualitative interviews to capture the adolescent voice in advance care planning to better understand how and why congruence was reached and to qualitatively assess capacity for end-of-life decision making.
Role: PI

Grant Number: 1 R21 NR019340-01
Dates: 09/09/2020-7/31/2022 
Funding Agency: NINR/NIH
Title of Grant: Palliative Care Needs of Children with Rare Diseases and their Families 
Goal of Grant: Our goal is to test the feasibility and acceptability and initial efficacy of the FACE-Rare intervention
Role: PI

Grant Number Award Number: 132840-PEP-18-200-01-PCSM
Dates: 1/01/2019-12/31/2020
Funding Agency: American Cancer Society-Judy White Memorial Clinical Research Pilot Exploratory Projects in Palliative Care of Cancer Patients and Their Families Grant
Title of Grant: Health Equity: Advance Care Planning for Spanish Speaking Teens with Cancer – 1st Resubmission (October 2017)
Goal of Grant: Our goal is to translate and adapt the FACE-for Teens with Cancer protocol into Spanish.
Role: PI

Grant Number 5 R01 NR015458-05 & No Cost Extension (NCE)
Dates of Grant Support 08/07/2015-04/30/2021
Funding agency NIH/NINR
Title of Grant “Building Evidence for Effective Palliative/End of Life Care for Teens with Cancer”
Goal of Grant “Building Evidence for Effective Palliative/End of Life Care for Teens with Cancer”
Our goal is to build evidence for effective palliative care, particularly advance care planning, for teens with cancer and their families.
Role: PI