Parenting Blog

Michele Coleman’s son, Dylan, was born with multiple congenital heart defects that were not detected in any of her ultrasounds or her fetal echocardiogram. A simple and inexpensive screening test known as pulse oximetry (pulse ox) saved his life, making Michele an advocate for pulse ox screening, and led her to testify in front of the DC Council on February 2, 2015.

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“It’s a beautiful way to capture the child’s experience. Every yellow bead was a night in the hospital, every black bead was a needle poke,” said Heather Langlois, a social worker who manages the Beads of Courage program at Children’s National. Learn more about our Cardiac ICU’s Beads of Courage program.

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Leighann Marquiss’ son, Ryan, was born in February 2009 with a serious congenital heart defect known as Hypoplastic Right Heart Syndrome, and a rare condition where his heart developed outside his body. Find out how the family’s journey helped Leighann learn to live in the moment and Ryan to thrive.

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