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Spina Bifida Program

young girl with spina bifida

The Dream Team

We've put together a multi-disciplinary team of experts to provide the best care possible for our spina bifida patients, in one location.

Meet us
The Spina Bifida Program at Children’s National Hospital is a leader in caring for infants, children and teenagers with abnormalities in the spine and spinal cord. We treat all forms of spina bifida, including:
  • Spina bifida occulta (mild form of the disease)
  • Meningocele (moderate form of the disease)
  • Myelomeningocele (severe form of the disease) 

Advanced and Comprehensive Spina Bifida Care

Features of the Spina Bifida Program at Children’s National include:

  • An emphasis on early intervention. We specialize in early recognition and early treatment of spina bifida to minimize complications for newborns and children, allowing them to grow healthy into adulthood.
  • Ease of comprehensive care. We bring together physicians from many specialties, including our colleagues in Orthopaedic Surgery and Sports Medicine, so patients and families can be evaluated and advised comprehensively on the same day by all members of the care team.
  • Advancing care through research. We are always looking for ways to improve the care we offer to our patients. Children’s research team conducts research related to spina bifida and other neural tube defects in hopes of preventing future cases of the disease. 

Our team offers many treatment options for patients with spina bifida to prevent infection and preserve the spinal cord and any exposed nerves. Treatment options include:

  • Braces and splints
  • Education for parents to help them manage their child’s condition at home
  • Medications
  • Positioning aids to help children sit, stand, and lie down
  • Rehabilitation
  • Surgery (if needed), including:
    • Bowel and bladder surgery
    • Orthopaedic surgery to treat issues such as curvatures in the spine, ankle, and foot deformities, contracted muscles and hip dislocations
    • Repair and closure of lesions on the back
    • Treatment for hydrocephalus (excessive fluid in the brain) 

We've put together a multidisciplinary team of experts to provide the best care possible for our patients, in one location. Our spina bifida team includes specialists in:

Contact Us

For more information about our Spina Bifida Program, email us.

Spina Bifida Program Team

  • Robert Keating

    Robert Keating
    Division Chief, Neurosurgery

  • John Myseros, MD, Neurosurgeon

    John Myseros
    Vice Chief, Neurosurgery
    Neurosurgeon

  • Carlos Sanchez, M.D.

    Carlos Sanchez
    Neurosurgeon
    Principal Investigator, Center for Cancer and Immunology Research

  • Laura Tosi

    Laura Tosi
    Director, Bone Health Program
    Orthopaedic Surgeon
    Rare Bone Disease, Bone Health and Orthopaedic Trauma Specialist

  • Leslie Phillips

    Leslie Phillips
    Pediatric Rehabilitation Specialist

  • Christina Ho

    Christina Ho
    Urologist
    Co-director, Spina Bifida Program

  • Hans Pohl

    Hans Pohl
    Division Chief, Urology
    Urologist
    Co-director, Spina Bifida Program

  • Briony Varda, M.D.

    Briony Varda
    Urologist
    Co-director, Spina Bifida Program

  • Children's National Hospital

    Nicole Allentuck
    Urology Care Coordinator
    Spina Bifida Care Coordinator

  • Tara Garbarino

    Tara Garbarino
    Nurse Practitioner

  • Christine Macalinao

    Christine Macalinao
    Nurse Practitioner