When Emily was 10 months old, her parents took her to the emergency department because she appeared to be in extreme abdominal pain.
The Myelin Disorders Program at Children's National Health System is a recognized leader in providing comprehensive clinical care, diagnostic testing and the most advanced treatments for children with inherited white matter diseases, or leukodystrophies.
Identifying the cause and type of a white matter disease can be challenging. To ensure that your child receives the best care and the most appropriate form of treatment, the Myelin Disorders Program provides your child with integrated care from a team of neurologists, biochemical geneticists, pediatricians, rehabilitation physicians, genetic counselors and speech therapists.
Features of the Myelin Disorders Program include:
In 2012, Emily Rose Wagner was born in Boston, and her parents were beyond thrilled to have their second child. The first few months after Emily was born were a dream come true for the entire family.
Medical and Biochemical Geneticist | Director, Myelin Disorders Program
Hearing and Speech Specialist
Division Chief, Pediatric Rehabilitation Medicine
In a high-profile study, nine authors affiliated with Children’s National bring awareness to next-generation diagnosis of white matter disorders, ending "diagnostic odyssey."
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Children’s National sees children from the Washington, D.C., area, across the nation, and around the world who need the kind of specialized expertise and child-focused care we offer.
Our providers represent medical and surgical specialties, family practice, and general pediatrics.
Our pediatric specialists work closely to ensure an integrated approach to caring for each child and family.
At Children’s National, our groundbreaking research is helping us advance the field while providing the best available care to children.