Resources for Families
We know DIPG takes a devastating toll not just on our young patients’ bodies, but on a child’s entire family.
At Children’s National, we offer many support programs and services for families, including:
- Concierge Services –If you’re traveling for your child’s treatment, our concierge team can arrange accommodations and help you feel more at home here.
- PANDA Team –Our PANDA Team provides extra support for children with serious illnesses and their families. We work to prevent and ease patients’ suffering, as well as to help families cope with a whirlwind of emotions.
- Chaplaincy Services –Clinically trained, on-call chaplains are available to patients, families, and staff 24/7 for support, education, ritual and consultation.
Around the Web
With few on-the-ground resources for this rare disease, we also connect families to DIPG-related online groups and web sites for more information and support.
- DIPG Registry –Learn more about DIPG and advances in the fight against it on this site built to support innovative DIPG research.
- Defeat DIPG –The Michael Mosier Foundation, started by a family who lost a child to DIPG, can help you get more information about the disease and treatment options.
- Smashing Walnuts Foundation –The family of DIPG patient Gabriella Miller started the Smashing Walnuts Foundation to raise money for scientific research and clinical trials. The charity has already awarded $100,000 in research funding to Children’s Research Institute for our DIPG studies.