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Resources for Families

At Children’s National, we understand that families have many questions about their child’s condition and care. In addition to any resources your provider may give you, our online resources can also support your ongoing treatment journey.

Teen girl smiling


STRIVE DC is a free mentoring and advocacy program for teens that are living with sickle cell disease.

Portrait of young girl smiling

Helpful Websites

We have compiled a list of helpful links to direct you to online education as well as support programs for managing sickle cell disease.

girl with doctor

BMT for Sickle Cell Disease (PDF)

This handbook was created to help answer common questions about BMT. If you have questions after reading the handbook, please share them with your healthcare team.
Bone and marrow transplant patient.

BMT Patient Handbook (PDF)

This handbook was developed by the BMT team members to help guide patients and their families throughout the transplant process.