Jayden's Story: Parent's Letter ProjectBi-lateral club feet- Jayden’s mom
My son was born prematurely and spent weeks in the Neonatal Intensive Care Unit (NICU). Doctors didn't tell me while I was pregnant that my son had any issues or disabilities beside his kidney disease. So when I gave birth, I thought I would have a perfectly normal, healthy (but early) baby boy! To my surprise while in recovery from my Cesarean Section (C-section) my mother came in to tell me that my son may look different and not to cry. At first I didn't take heed or listen. When I first saw him I was so scared and didn't know what to do because I wasn't allowed to touch him or even hold him. I was crushed and felt hopeless to know that God would let something like that happen to my innocent child!
My son has had five different surgeries and has had casting and braces since he was born. He had his first surgery at the young age of 4 months. He is now going on 4-years-old in October. In the end, I know he will never get over this. He will have pain in his feet for the rest of his life. But I know God made my child like this for a reason whether it was to make my own family stronger or so that I may help somebody else who is going through this. Never lose hope. There is always somebody out there with something far worse then this. Be thankful for the time you have with your little ones, I cherish every moment that I spend with mine.
Jayden’s mom, Tina
Director, Rare Disease Institute | Division Chief, Genetics and Metabolism