Video Series: Our Team
Health Topics: Neurosurgery
John Myseros, M.D., is a neurosurgeon at Children's National Health System.
"My hope is that maybe someone in a similar situation may read this and realize that there is hope, that there is someone out there who can help, no matter how much it seems that there isn't."
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Tumors of the optic nerve and visual pathway are the most common types of brain tumors in children with neurofibromatosis.
Plexiform neurofibromas are a common complication of neurofibromatosis. These predominantly inherited tumors can occur anywhere in the body, including the head and neck, extremities, areas around the spine and deep in the body where they may affect organs.
Schwannomatosis is a very rare form of neurofibromatosis that has only recently been recognized and appears to affect about 1 in 40,000 individuals. It is less well understood than NF1 and NF2, and features may vary greatly between patients.