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Parenting Blog

Posts published in February 2015

coleman family

Mommy Advocate: How Pulse Oximetry Inspired One Mom to Help Others

Friday, February 27, 2015

Michele Coleman’s son, Dylan, was born with multiple congenital heart defects that were not detected in any of her ultrasounds or her fetal echocardiogram. A simple and inexpensive screening test known as pulse oximetry (pulse ox) saved his life, making Michele an advocate for pulse ox screening, and led her to testify in front of the DC Council on February 2, 2015.

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beads of courage

Beads of Courage Helps Tell the Stories of Cardiac ICU Patients

Monday, February 23, 2015

“It’s a beautiful way to capture the child’s experience. Every yellow bead was a night in the hospital, every black bead was a needle poke,” said Heather Langlois, a social worker who manages the Beads of Courage program at Children’s National. Learn more about our Cardiac ICU’s Beads of Courage program.

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Ryan and mom

How My Son's Complex Heart Conditions Changed My Plans and Taught Me to Live in the Moment

Thursday, February 12, 2015

Leighann Marquiss’ son, Ryan, was born in February 2009 with a serious congenital heart defect known as Hypoplastic Right Heart Syndrome, and a rare condition where his heart developed outside his body. Find out how the family’s journey helped Leighann learn to live in the moment and Ryan to thrive.

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