Washington Adult Congenital Heart Program (WACH) Contact number | 202-821-6289

Washington Adult Heart Congenital Program

Follow My Heart

We've created a tool to help patients take an active role in managing their own congenital heart disease as they grow into adults.

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Developed in partnership with the Washington Hospital Center, the Washington Adult Congenital Heart (WACH) program provides continuity of care for adults with congenital heart disease – both survivors of early surgery and newly diagnosed adults. This unique collaboration is the only one of its kind in the immediate Washington, DC, area.

Comprehensive Care

WACH meets the unique needs of adult patients with congenital heart disease by providing all the necessary resources and highly sophisticated care in a central location.

More than 90 percent of children who undergo surgery to correct congenital heart defects live to adulthood; however, nearly 50 percent of these survivors do not seek the regular cardiac care, which is critical for their health.

Studies and clinical information show that adult survivors face an increased risk of cardiac conditions years after corrective surgery. Patients with tetralogy of Fallot, aortic stenosis, coarctation, and transposition of the great arteries are at the highest risk. The original surgeries were the first of their kind, so no long-term history was known when they were performed. National guidelines from a variety of professional organizations all suggest at least one evaluation in a specialized center for adults with congenital (inborn) heart disease.

The program team follows patients from birth through adulthood to ensure care is provided from board-certified pediatric and adult cardiologists, cardiothoracic surgeons, intensive-care experts, and a skilled support team, all of whom are specially trained in caring for congenital heart disease patients.

A Partnership for Patients

The partnership between Children's National and the Washington Hospital Center continues an informal relationship developed several years ago by the hospitals, situated on adjoining campuses.

Program Director Karen Kuehl, MD, MPH, has provided services for adults with congenital heart problems at Children's National since 1998. George Ruiz, MD, and Anitha John, MD, PhD, have completed a specialized fellowship in the management of congenital heart defects in adult patients.

By combining intellectual resources and technology from both institutions, such as cardiac MRI, cardiac catheterization, and electrophysiology services, doctors provide the most thorough evaluations and treatment for complex congenital heart patients.

Resources for Patients and Families

The WACH program is associated with the Children's National Heart Institute, a leading center of comprehensive cardiac care in the United States.

Children's National also created Our Stories to help parents support each other by sharing their stories. The WACH program provides an opportunity to read a patient's story, one of the many patients who benefited from the collaborative expertise of the WACH care team.

Additional information and resources about adult congenital heart disease can be found at:

Derek's Story

Tetralogy of Fallot TOF

Patient story

"The doctors and nurses at Children's have always done everything that they can to make my experiences pleasant. In a sense, many have become an extension of my family."

Derek's Story

The Washington Adult Congenital Heart Program (WACH) Team

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