Tuberous Sclerosis Program Contact number | 571-226-8368

Children’s National Health System is one of only 16 sites in the United States with a clinic devoted to the treatment of tuberous sclerosis. We treat our children who are diagnosed with TSC, and continue to provide consultation with primary care physicians and some outpatient services for our patients into adulthood. Children with TSC may have associated conditions or complications, such as seizures that result from tumors growing in the brain. 

Many also have attention deficit disorders, developmental delays, and learning disorders. Our multidisciplinary program ensures that TSC patients have access to all of the necessary specialists. The care team includes pediatric specialists from the following divisions at Children’s National:

Specialized Care for Children

TSC is a relatively rare genetic disorder that causes tumors to form in various organs, including the brain, eyes, heart, kidney, skin, and lungs.

The true prevalence (the number of cases) of TSC is unknown, but its incidence (new cases) is estimated at 1 in 6,000 live births. This means approximately 50,000 individuals in the United States and more than 1 million worldwide have TSC. It occurs in both sexes and in all races and ethnic groups.

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Pediatric specialists work closely to ensure an integrated approach to caring for each child and family.

Resources for Families

Children’s National offers resources for families to help answer questions and ease their experience.