Cooperative International Neuromuscular Group
CINRG was formed in 1999 as the clinical research arm of the Duchenne Muscular Dystrophy Research Center (DMDRC) and the Center for Genetic Medicine Research at the Children’s National Medical Center (CNMC). The CINRG network continues to grow and now includes 23-sites in 11 countries. Children’s National Medical Center is both a clinical trial site (led by Dr. Robert Leshner) and houses the CINRG Coordinating Center, which provides leadership to the network, is located in the Children’s Research Institute on the 5th floor of Children's National in Washington, DC.
To be a pre-eminent neuromuscular research group striving to advance knowledge of Duchenne Muscular Dystrophy and other neuromuscular disorders through the implementation of cutting edge clinical trials throughout various countries and cultures over the world.
To find a cure and advance the standard of care for all patients and families with Duchenne Muscular Dystrophy over diverse geographies and cultures. No child with Duchenne Muscular Dystrophy will be left untreated or without access to health care professionals, education or compassionate care.
The CINRG network is comprised of medical doctors and scientists who are working together to improve the quality of life of patients with neuromuscular diseases. Today, CINRG works to find a cure for Duchenne Muscular Dystrophy and other neuromuscular diseases by seamlessly integrating basic and preclinical science into multicenter human clinical trials. We work to achieve this goal by working to develop and bring new therapies into clinical trials. CINRG also offers an efficient and organized group of research sites, with neuromuscular clinics throughout the world, available for participation in CINRG studies or other Industry or investigator initiated research.
CINRG hopes to increase our understanding of how neuromuscular diseases progress, what other factors contribute to these symptoms, and how to slow or prevent these symptoms. This could ultimately improve the quality of life of patients and families living with neuromuscular disease.
CINRG Site: Children’s National Medical Center
The Muscular Dystrophy Association clinic at Children's National has grown over this past 3 years as a result of the visibility of CINRG. Dr. Leshner, a pediatric neurologist and Dr. Olga Morozova, a pediatric physiatrist. Drs. Leshner and Morozova co-direct this multidisciplinary clinic which meets the medical, personal and educational needs of our young patients afflicted with over 40 childhood neuromuscular diseases. The clinic provides consultants in physical therapy, genetic counseling , nutritional counseling and social services. Children with complex diagnostic and therapeutic problems are referred to our team from all corners of the United States and internationally as well.
Other CINRG Sites within the Network:
Children’s Hospital of Virginia: Richmond VA
Children’s Hospital of Pittsburgh: Pittsburgh PA
University of Tennessee, Memphis: Memphis, TN
Washington University-St. Louis, St. Louis, MO
Mayo Clinic-Rochester: Rochester, MN
University of California-Davis: Sacramento, CA
University of Minnesota: Minneapolis, MN
Texas Children’s Hospital: Houston, TX
Carolinas Medical Center: Charlotte, NC Children’s Hospital
University K.U. Leuven: Leuven, Belgium
University of Puerto Rico: San Juan, Puerto Rico
Hadassah Hebrew University: Jerusalem, Israel
Bloorview MacMillan Medical Center: Toronto, Ontario, Canada
Royal Children’s Hospital: Melbourne, Australia
Buenos Aires: Buenos Aires, Argentina
Queen Silvia Children’s Hospital: Linkoping, Sweden
The Children’s Hospital at Westmead: Sydney, Australia
Alberta Children’s Hospital: Calgary, Alberta, Canada
University of Alberta: Edmonton, Alberta, Canada
Centro Clinico Nemo: Milano, Italy
National Center of Neurology and Psychiatry: Tokyo, Japan
If you have any questions about the CINRG Network or the CNMC CINRG site led by Dr. Robert Leshner, please contact us at:
The Cooperative International Neuromuscular Research Group (CINRG)
Phone: (202) 476-4110
Fax: (202) 476-6014