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  Children’s National Researcher Receives $3 million to study Family-Centered Advance Care Planning
November 8, 2010

Washington, DC — Children’s National Medical Center received more than $3 million in grants from the National Institutes of Health and the American Cancer Society to study advance care planning for teens with AIDS and cancer, respectively. Led by Maureen Lyon, PhD, the grants will help advance end-of-life care to relieve suffering and maximize quality of life for teens.

“We know that teenagers and their families want to be involved with decisions about their end-of-life care, but they don’t really know how,” said Dr. Lyon, a researcher and psychologist in the Division of Adolescent and Young Adult Medicine. “These grants will allow us to pilot different interventions to determine the best way for families to handle decisions during a difficult time.”

The 5-year grant from the National Institute of Nursing Research at NIH totals $3,065,566 and will fund a randomized clinical trial to test the Family Centered Advance Care Planning (FACE) model for teens living with AIDS. The grant from the American Cancer Society, totaling $142,708, will test the FACE model for teens living with cancer.

Dr. Lyon has done extensive research in the area of adolescent palliative care. Read about a previous study published in the Journal Pediatrics. She works with adolescents in the Division of Adolescent and Young Adult Medicine and the Burgess Clinic, which provides medical and social support services for children and adolescents living with HIV and AIDS.

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Contact: Emily Dammeyer: 202-476-4500

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Children’s National Medical Center in Washington, DC, has been serving the nation’s children since 1870. Home to Children’s Research Institute and the Sheikh Zayed Institute for Pediatric Surgical Innovation, Children’s National is consistently ranked among the top pediatric hospitals by U.S.News & World Report and the Leapfrog Group. With 283 beds, more than 1,330 nurses, 550 physicians, and seven regional outpatient centers, Children’s National is the only exclusive provider of pediatric care in the Washington metropolitan area. Children’s National has been recognized by the American Nurses Credentialing Center as a Magnet® designated hospital, the highest level of recognition for nursing excellence that a medical center can achieve. For more information, visit, receive the latest news from the Children's National press room, or follow us Facebook and Twitter.