Inborn Error of Metabolism 2 - A Child with a Rare Disorder


A parent discusses her experience at Children's National after her child was diagnosed with an inborn error of metabolism.

Caroline's Story

Patient story

"You are probably still trying to remember how to say your child's disorder. Don't worry. It took me three days!"

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Share your birthday with a child. Celebrate your life, and give a chance to someone who desperately wants to have as many as you.Make it happen