Learn how you can support the Sickle Trotters in this year's Race For Every Child on September 13. With last year's donations, we were able to fund a camping trip for 40 children with sickle cell disease.
The Sickle Cell Disease Program at Children’s National is among the largest pediatric sickle cell disease programs in the country. Each year, we treat more than 1,400 children and young adults, from birth to age 21, with all types of sickle cell diseases.
We have helped thousands of patients, but never consider the care we provide routine. Our comprehensive care team works together to develop an individual care plan for every patient.
The program addresses all aspects of a child’s clinical needs. All of the necessary specialists are in one location:
Through blood transfusions and the latest drug therapies, Children’s National specialists lessen the effects of the disease with early interventions through our Infant Sickle Cell Program, and have even cured the disease through our Sickle Cell Transplant Program.
Comprehensive care also means support for families to help them cope with a child’s illness, including a dedicated stress management team. As part of the Center for Cancer and Blood Disorders, patients, parents, and siblings have access to comprehensive mental health and psychosocial services and other helpful resources through the Patient and Family Support Program.
Each year, 80 newly diagnosed infants with sickle cell disease are seen by our Infant Sickle Cell Program team of physicians, nurse practitioners, social workers, genetic counselors and development specialists that provides education about the diagnosis, supportive care, and treatment options to families.
Download a PDF overview of pain management options offered at Children's National for children with sickle cell disease. Before your child begins the transplant process, read more about the Human Leukocyte Antigen (HLA) typing, which is how we identify potential donors. HLA are proteins found on the majority of your body’s cells. HLA typing is a blood test that requires approximately 10mL of blood.
"In the midst of every situation remember that there is no situation that you will face that you (along with your support team) are not well-equipped to handle."
Allistair Abraham, MD
Blood and Marrow Transplantation Specialist
Deepika Darbari, MD
Jacqueline Dioguardi, PA-C
Ross Fasano, MD
Michael Guerrera, MD
Emily Meier, MD
Karen Smith-Wong, CPNP-PC
Elizabeth Yang, MD
Jay Greenberg, MD
Barbara Speller Brown, CPNP-PC
Emily Meier, MD, Director of the Sickle Cell Disease Program, talks about bone marrow transplants and sickle cell disease in a recent Washington Post article.
Children’s National provides a wide range of clinical services and specialties dedicated to improving children’s health.
Have a question about a specific disease or condition or treatments or services we offer?
Children’s National sees children from around the Washington, DC, metropolitan region, nation, and world who need the kind of specialized expertise and child-focused care we offer.
Our providers represent medical and surgical specialties, family practice, and general pediatrics.
Pediatric specialists at Children’s National work closely to ensure an integrated approach to caring for each child and family.
Children’s National offers resources for families to help answer questions and ease their experience.
Children’s National Health System provides suggested treatments to compliment top-notch medical education and experience.