Conditions

From the beginning of care, through treatment, and into recovery, we provide an experience that’s right for children and families. Children’s National Health System provides a wide range of clinical services and specialties dedicated to improving children’s health.

Pediatric Neurofibromatosis

NF1 is a life-long condition usually diagnosed early in life, often within the first year. NF1 is diagnosed based on specific skin, ocular, and other physical findings, and genetic blood testing in selected cases.

Neurofibromatosis Tumors

Tumors of the optic nerve and visual pathway are the most common types of brain tumors in children with neurofibromatosis.

Pediatric Learning Disabilities and Neurofibromatosis

As many as 80 percent of all children with neurofibromatosis will have associated difficulties that affect learning, including attention problems, memory problems, spatial perception difficulties, and selective problems in reading or mathematics.

Pediatric Plexiform Neurofibromas

Plexiform neurofibromas are a common complication of neurofibromatosis. These predominantly inherited tumors can occur anywhere in the body, including the head and neck, extremities, areas around the spine and deep in the body where they may affect organs.

Pediatric Malignant Peripheral Nerve Sheath Tumors

Malignant peripheral nerve sheath tumors (tumors that develop in the cells surrounding the nerves on the brain and spinal cord) may occur in up to five percent of patients with neurofibromatosis during their lifetime.

Pediatric Schwannomatosis

Schwannomatosis is a very rare form of neurofibromatosis that has only recently been recognized and appears to affect about 1 in 40,000 individuals. It is less well understood than NF1 and NF2, and features may vary greatly between patients.