Myelin Disorder Team at Children's

Our team is committed to providing the best and most compassionate clinical care. To ensure all patient and family needs are met, the program provides family and patient support with the assistance of a social worker, genetic counselor, and through collaboration with support and advocacy groups. Alongside our clinical care we have an active research program working to improve diagnosis, treatment, and outcomes for patients.

The Myelin Disorders Program providers include specialists in:

Come to Children’s for World-Class Leaders

The program lead, Adeline Vanderver, MD, PhD, Neurologist and Director, Myelin Disorders Program has been instrumental in the creation of the Global Leukodystrophy Initiative (GLIA), a consortium of researchers and clinicians devoted to the discovery of novel variations responsible for pediatric white matter disorders and to translate these findings into clinical treatments. Under the leadership of Dr. Vanderver, Children’s National serves as a global resource for information, research, advocacy, and treatment for families searching for information and care for their child.

Meet the Team