When Emily was 10 months old, her parents took her to the emergency department because she appeared to be in extreme abdominal pain
The Myelin Disorders Program at Children's National Health System is a national leader in providing comprehensive clinical care, diagnostic testing and the most advanced treatments for inherited white matter diseases in more than 500 patient visits each year.
The Myelin Disorders Program takes a multidisciplinary approach to the diagnosis and treatment of inherited disorders of cerebral white matter, or leukodystrophies.
Features of the Myelin Disorders Program include:
In 2012, Emily Rose Wagner was born in Boston, and her parents were beyond thrilled to have their second child. The first few months after Emily was born were a dream come true for the entire family.
Adeline Vanderver, MD, Director of the Myelin Disorders Clinic and international leader in the study of leukodystrophies, diagnosed young Erica, which led to the to the discovery of the gene responsible for Erica’s rare neurological disorder.
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Children’s National sees children from around the Washington, DC, metropolitan region, nation, and world who need the kind of specialized expertise and child-focused care we offer.
Our team is committed to providing the best and most compassionate clinical care.
Pediatric specialists work closely to ensure an integrated approach to caring for each child and family.
At Children’s National, our groundbreaking research is helping us advance the field while providing the best available care to children.