Matthew's Story: Parent Letter Project Tetrology of fallot- Matthew's mom

Dear parents of a child with a heart defect,

Nobody ever wants to hear from a doctor that their newborn baby has a heart defect. If you do have to hear that kind of news, you can only hope that the doctor is affiliated with Children's National Health System.

Our son, Matthew, was born premature in November of 2009. A routine check-up in the Neonatal Intensive Care Unit (NICU) discovered a heart defect and a doctor on call from Children's National was brought in. We were told that Matthew had Tetralogy of Fallot. Of course, having no idea what this was, the doctors explained to us in great detail the defect and what was needed to fix it. Our hearts melted that our first born was going to have open heart surgery at the young age of two months. However, two months ended up being too long to wait and in early December 2009, when Matthew was only three weeks old and not even 5lbs, we were rushed to Children's National.

Of course we were scared and confused but from the moment we arrived on the Cardiac Intensive Care Unit (CICU) floor we were welcomed with open arms. I cannot say enough about the care Matthew got, as well as my husband and I, by all the nurses and doctors on call each and every day. It is overwhelming for any parent with children of any age to have to experience something like this. I never thought in a million years that I would be one of these parents. Now that I am and have gone through the experience I cannot thank Children's National enough for its kindness, professionalism, and knowledge.

If you too get the news that your child is ill, don't even think about it, rush them to Children's National, trust me you will rest easier if that is possible.

Treatment Team

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