Jaelynn's Story: Parent's Letter ProjectUreter reflux (VUR)- Jaelynn’s mom
First of all, I'd like to tell you that you are not alone. I went through this situation last year so I know how scary it can be for the child and the parent. Just know that you have trusted some of the best doctors in the country and they are amazing. There are no words to express my gratitude to the doctors, nurses, and staff. It was all very hard, especially as a single mom.
My daughter Jaelynn kept getting high fevers (around 104 degrees Fahrenheit) starting around the time she was 8-months-old. Her doctor would just give her an antibiotic without knowing what was causing her high fever. My mom suggested she be tested for reflux because my younger sister had it as an infant, but eventually grew out of it.
Around the time of her first birthday in 2009, she had all the testing done. It was hard to watch her like that because she was so small and scared. They determined she did have reflux (grade 4) and we went through many urine tests, fevers, and antibiotics over the next year and a half. It hadn't been improving, so after more tests, we met with H. Gil Rushton, MD, and he opted for bilateral ureter reimplantation on May 17, 2011. I was terrified and heartbroken that I had to put her through that but I knew I made the right decision. I even felt guilty going to eat lunch or do anything while she was in surgery.
The surgery was three hours long and we were in the hospital for two days. Right after the surgery, Dr. Rushton met with me and explained everything that happened and what I should expect. He went out of his way to make sure all of my questions were answered and everything was ok. She really liked staying at "Doctor Bear's." The staff was great and there were plenty of things for her to do.
She is now a happy, healthy 4-year-old. Since the surgery, she hasn't had one single urinary tract infection or any issues relating to the reflux. I know that it's very scary to have to think about surgery, but it's been the best thing I could have done for her. I would love to be a support for any other families going through this as well.
Tracy, Jaelynn's mom