Ethan's Story: Parent's Letter Project Neuroblastoma- Ethan's mom

I wanted to write a letter to tell you that you are not alone. Hearing the words "Your child has cancer" are some of the most difficult words to hear, but I want to tell you that you will get through this.

Our son was diagnosed with neuroblastoma when he was just six months old. I can remember the rush of emotions that I felt as I heard those words as if it were yesterday. We were sent from our 'normal' lives into a life of cancer, hospitals, uncertainty, and panic. We were also sent into a world of the most caring and compassionate people whom I have ever met in my life.

As you are about to embark on this journey, I am not sure what 'advice' I would give to you. I would say to take a deep breath and realize that you are in capable hands. I would also advise you to read everything that you can and ask questions. Realize that you are your child's best advocate; so do not be afraid to speak up and ask the hard questions.

I would also tell you to hold on to each second of 'normal.' Take the time to enjoy the little things in life. The journey that you facing will certainly teach you to 'not sweat the small stuff.' Hold on to the lessons that you are learning and remember as a caregiver that it is important for you to lean on others for support.

You are stronger than you ever realized. Sincerely,

Ethan's mom, Tanya

Treatment Team

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