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For Teens with Sickle Cell Disease
Sickle Cell Disease Program
 
 
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Sickle Cell Disease Program
Sickle cell Transition Education Project (STEP)

Ask an Expert


Have a question? Ask Children’s sickle cell disease experts. All questions will remain anonymous, and will be answered as soon as possible. Submit your questions to SickleCellTeam@childrensnational.org.



Q: How long will I live?

Answer: This is a serious question that many teens with sickle cell think about. Today in the US most people with sickle cell live past the age of 50. In the near future, as medical care improves, we hope that the average lifespan of an individual with sickle cell disease will be close to “normal”.

The bad news – sometimes young adults and rarely even teenagers do die from health problems related to sickle cell disease.

The good news – if you receive regular medical care and follow healthy living recommendations, you will be much more likely to live a long life.

Bottom line: you should plan on living a full life, but need to take care of yourself!


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Q: What famous people have sickle cell anemia?
Answer:

  • Tionne “T-Boz” Watkins of the group “TLC”
  • Miles Davis, Jazz Musician
  • Paul Williams, Singer (The Temptations)
  • Georgeanna Tillman, Singer (The Marvelettes)
  • Prodigy, Rapper (Mobb Deep)


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Q: Are there college scholarships for people with sickle cell anemia?
Answer: Yes, scholarships are available from the following associations and organizations:


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Q: Are there any resources in the Washington, DC, area for sickle cell anemia?
Answer: Yes, there are many local resources in the Washington, DC, area for people with sickle cell anemia, including:




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