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Down Syndrome Clinic


 Read a parent's letter
Children’s National Medical Center has the only dedicated Down syndrome clinic in the Washington, DC area. The clinic is a specialized program coordinated through the Division of Genetics and Metabolism.

Clinic Director Karen Putnam Summar, MD, and Co-Director Kenneth Rosenbaum, MD, lead a multidisciplinary team, which includes medical geneticists and experts in the developmental and nutritional needs of patients with Down syndrome.

Improving Quality of Life for Children and Families
The clinic’s team provides comprehensive care for more than 3,000 patients annually, and helps families manage the complex needs of children with Down syndrome. Our family-centered approach to care enables children to reach their full potential and eases stress on families.

A long established resource in the community, the Down syndrome clinic at Children’s National works with families beginning with prenatal evaluation and can assist, if necessary, at the birth of the child. With the parents we tailors a health care plan that goes beyond clinical care. The team identifies a variety of resources for families, refers families to appropriate community programs, and can recommend support groups for parents and children. We also distribute parent education materials, and provide culturally sensitive assistance as needed.

The clinic’s staff works closely with specialists throughout Children’s National and referring pediatricians to achieve medical
  • Comprehensive medical assessment
  • Development diagnostic assessment
  • Coordination/monitoring of development services
  • Emergency newborn consultation at area hospitals on request
  • Specialty referrals


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